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Home » Archive for February 2014
By Paige Maguire
Thursday, February 27, 2014
ADAO
COMMAND
IATP
mavis nye
Mesothelioma Bill
Saatchi Bill
Verastem
Mesothelioma, the media and Mavis
There are some organisations with high profiles which are very good at grabbing media attention, but it is rare to find the eye of the media...
By Paige Maguire
Tuesday, February 25, 2014
andrew lawson
Mesothelioma Priority Setting Partnership (PSP)
Saatchi Bill
Wt-1 vaccine
Zometa
Remembering Dr Andrew Lawson
Dr Andrew Lawson was diagnosed with mesothelioma in 2007, when he was 48 years old. It seems that he was exposed to asbestos as a medical st...
Vansel Early Phase Drug Trail Cycle 1 Days 17- 21: Routines and reactions
Just one more dose of selumetanib tonight and Steve will have completed the first week of taking both drugs in the VanSel drug trial. We ha...
By Paige Maguire
Thursday, February 20, 2014
Access to Medicine
ADAO
Mesothelioma Priority Setting Partnership (PSP)
Saatchi Bill
Action stations: Mesothelioma Priority Setting Partnership (PSP); Saatchi Bill; Access to Medicine and the ADAO
I have written previous posts about the Mesothelioma Priority Setting Partnership, and the Saatchi Bill . Both of those are now gatherin...
VanSel1 biological drug trial Cycle 1, Days 15-16: Bloods, drugs and tests
It feels like we have spent the last two days in hospital. We knew that Monday would be a long day in Bay 34. Bay 34, our "home&quo...
VanSel1 biological drug trail Cycle 1, Days 6 - 14: Watching and waiting
These last two weeks, i t feels like we have been on guard duty 24/7 - watching and waiting on a number of fronts, ready to spring into ac...
By Paige Maguire
Friday, February 14, 2014
Blog Post 500 - a message from Steve
Hello, it’s the 500th post so it must be time for me to write my guest piece again. Well, I’m still here, still feeling fine, still no appar...
Mesothelioma, innovative treatment and the Saatchi Bill
If you are reading this blog, then I don't need to remind you that there is no cure for mesothelioma - yet. There are "treatments&...
VanSel Cycle 1, Days 4-5: Blood, blood, glorious blood
Rather than mud, mud, glorious mud (although there's a lot of that about at the moment!) since yesterday morning our waking hours have...
By Paige Maguire
Wednesday, February 5, 2014
Mesothelioma Priority Setting Partnership (PSP)
research
The Mesothelioma Priority Setting Partnership (PSP)
The Mesothelioma Priority Setting Partnership (PSP) is bringing together people with mesothelioma, their families, carers and the healthca...
Clinical trials: Clearer rules and better protection for patients
Thousands of clinical trials have not reported their results; some have not even been registered. Information on what was done and what was...
VanSel drug trial: Cycle 1 Day 1 of 42
It has begun! We arrived at hospital about 10.15 am and went straight up to the clinical trials unit where Doctor Nick greeted us and direct...
Into the unknown
Our next journey into the unknown starts today. We are as prepared as we can be. Some loose ends tied up....Framed print delivered for ...
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