Social occasions and celebrations

It's been a busy time since the last post, full of social occasions and celebrations.   I welcomed in the Year of the Goat/Sheep by danc...

and life goes on

The last time I posted a blog, Lucy the plasterer was putting a skim coat on the century old walls of our hall, stairs and landing.  Today, ...

AZD0424 clinical trial start of Week 4, Cycle 1: lump

Back to hospital today for Steve's weekly check up at the start of the last week of Cycle 1 of the AZD0424 drug trial.   Weight, BP, ECG...

beginning to bounce back

It's now two weeks since Steve finished the Vansel drug trial. During the first week off the drugs, it felt rather like two steps forwar...

Mesothelioma - making sense of recent developments

April 2014 is shaping up to be a significant month for the mesothelioma community and other people with rare and life threatening diseases. ...

VanSel1 drug trial Cycle 2 Days 16-21

One more dose of selumetanib tonight and Steve will have finished the third week of cycle 2 of the VanSel1 clinical drug trial.  Just one mo...

VanSel1 Cycle 2 Day 15: Better out than in....

After a weekend of feeling vulnerable with frequent visits to the loo, Steve still felt rather agitated when we went to hospital this mornin...

Early Access to Medicines Scheme and Medical Innovations (Saatchi) Bill

Two exciting developments of particular interest to people with mesothelioma and other life threatening conditions for which there is no cur...

VanSel Early Phase drug trial - Day 42 and the end of cycle 1

One more dose of selumetanib tonight and Steve will have completed the 42 day long first cycle of the VanSel 1 drug trial!   He's had si...

Mesothelioma, the media and Mavis

There are some organisations with high profiles which are very good at grabbing media attention, but it is rare to find the eye of the media...

Remembering Dr Andrew Lawson

Dr Andrew Lawson was diagnosed with mesothelioma in 2007, when he was 48 years old. It seems that he was exposed to asbestos as a medical st...

Action stations: Mesothelioma Priority Setting Partnership (PSP); Saatchi Bill; Access to Medicine and the ADAO

I have written previous posts about  the Mesothelioma Priority Setting Partnership,  and  the Saatchi Bill .  Both of those are now gatherin...

VanSel1 biological drug trail Cycle 1, Days 6 - 14: Watching and waiting

These last two weeks, i t feels like   we have been on guard duty 24/7 - watching and waiting on a number of fronts, ready to spring into ac...

Mesothelioma, innovative treatment and the Saatchi Bill

If you are reading this blog, then I don't need to remind you that there is no cure for mesothelioma - yet.  There are "treatments...