A bit of a roller coaster week

For us, it's been a good news week. We were delighted to hear that our friend, fellow meso warrior Mavis, will be taking part in a Phase...

Back in the system and getting back on track

Steve is back in the "normal" clinic system.  However, we didn't get to see Dr T or one of the usual registrars when he went f...

feet on the ground...plans all up in the air

Although his skin is still sensitive to sunlight and strands of hair continue to fall out from time to time, Steve continues to recover from...

Treading water

It feels a bit like we've been treading water this week, waiting for things to happen... Four weeks after finishing the VanSel early pha...

An anniversary, a publication, a visit and a close encounter with a "donut"

Three weeks since Steve finished the Vansel drug trial and the side effects continue to remind us what his body has been through.  He still ...

beginning to bounce back

It's now two weeks since Steve finished the Vansel drug trial. During the first week off the drugs, it felt rather like two steps forwar...

slowly, slowly, slowly....

We knew better than to expect instant relief from all the side effects of treatment once Steve stopped taking vandetanib and selumetanib on ...

The trial is over

Today is Day 28 of Cycle 2 of the Vansel Early Phase drug trial which started on 3 February.  Which means after 70 days and two cycles of tr...

Mesothelioma - making sense of recent developments

April 2014 is shaping up to be a significant month for the mesothelioma community and other people with rare and life threatening diseases. ...

VanSel1 Drug Trial Cycle 2 Days 22-23: "Fatbergs" and finding time to eat

Yesterday was hospital day - the last time Steve was required to give bloods for testing in this second, and maybe final, cycle of the VanSe...

VanSel1 drug trial Cycle 2 Days 16-21

One more dose of selumetanib tonight and Steve will have finished the third week of cycle 2 of the VanSel1 clinical drug trial.  Just one mo...

VanSel1 Cycle 2 Day 15: Better out than in....

After a weekend of feeling vulnerable with frequent visits to the loo, Steve still felt rather agitated when we went to hospital this mornin...

VanSel1 Trial Cycle 2 Days 10-14

Another unpredictable week in terms of how Steve feels - at times he has been O.K, then the stomach cramps begin, or he has to rush to the l...

VanSel Cycle 2 Days 8-9: a small milestone

A week into cycle 2 of the VanSel drug trial and we weren't sure whether Steve would be able to carry on.  He had not been feeling great...